Its been awhile since I've updated! Sorry! I am doing great. We found out that that I will be able to get my chemo drugs mailed to me thru my Insurances speciality pharmacy. Since the drug I am on was FDA approved in August, I am actually able to transfer my care back to KS if I want to. I chose not to do that. I would rather keep my care at Vanderbilt for now. I really like my Dr and I feel like if the cancer decides to return, I will definitely be able to receive better care at Vanderbilt then I will be able to loccally. There are just more options available at Vanderbilt.
So, this week I am returning to Vanderbilt. I will opt out of my trial and set up a new travel schedule with my Dr. I know that he will be ok with me returning every 3 months. So for now, that is what I am shooting for. He would actually probably be ok with me coming back every 4 months, but thats a little nerve wracking for me.
Sometimes I truly cant believe how long I have been on this drug. With ZERO reoccurance! It is absolutely amazing! December 20th will be 20 MONTHS!! 20 months I have been on this amazing, life changing drug! The average is SIX months! I am truly in awe!
As we discovered this drug is NOT cheap! A three month supply, without insurance would of cost me $24,000!! Holy smokes! Luckily, we are blessed and have great insurance so I only pay a very small portion of that. I could of stayed in the trial and continued to receive my drugs for free, but since I will get to space out my trips a little more, this will actually end up saving us more money. And I am all for saving money! It will also allow me to spend more time with my beautiful family. And I am also all for that:)
Thank you all for your prayeres. My life is good. I am blessed.
Sjogren's and Bicycles
3 days ago