Not much to update, just didn't want some of you to worry about me:) I'm doing quite well actually. Still having some joint pain and fatigue, but I've been through worse. The kids and I are keeping quite busy. We have been swimming, museum trips, playdates, Mommy and Me playgroup, open gym, and the children's theatre. There hasn't been much time for anything else! Including worrying!
I head back to Nashville the first week of August. On Monday I have labs, EKG, repeat CT scans, and a Dr appt. On Wednesday I have an appt with the Dermatologist and then I can head home. I have NO IDEA what I will do on Tuesday. I am quite annoyed that I have a day in between like that, however, no matter how much I bitched and moaned, they wouldn't change it!
6 days ago