So, I am constantly finding new lumps. These are different from any that I have discovered before. However, I am fairly certain they are melanoma. So, in theory this damn drug worked less than 2 months on me. I am pissed. I am angry. I am sad. I am scared.
But, I do have a plan. Which if you know me, you are not surprised to hear this. When the RO5 was working wonders on me, I was only taking it. No supplements, at all. I was then taken off the RO5 for a week and a half, then when I was restarted on it, it was at a lower dose, but I was also allowed to take my supplements. I have always wondered if the supplements were affecting the effectiveness. I have decided to stop all of my supplements, including the IVs of Vitamin C, for now. I have already emailed my nurse at MDA to give me a call. I am hoping to make an appt at MDA for the end of next week. If the RO5 begins working, then I will know that the supplements are affecting the uptake of the RO5. If new spots continue to pop up, then I will keep the appt at MDA and see what my oncologist there recommonds. If the spots begin shrinking, then I can cancel my appt at MDA and just discontinue the supplements.
I don't know what to expect. I really thought this would work longer. I really did. I am in complete shock that this is happening. The hard part about trial drugs is you just don't know what will make it work or how long it will work. Hopefully my nurse at MDA has some helpful suggestions.
Please continue to pray for me, and for my family. It hurts so bad, knowing that my kids may be forced to grow up without their mother. It's not fair. Not fair at all. Something has to work on this. Right?
Sjogren's and Bicycles
3 days ago