The tumor in my lymph node continues to get smaller and smaller. I can't feel the tumor in my hip, so I'm not sure what is going on with it, but I am assuming it is doing the same thing as the other tumor and disappearing also!
My guess is, that my the time I return to Vanderbilt for my next CT scan, which will be the beginning of June, that both tumors will almost be completely gone. How awesome is that!
I will stay on the RO5 until it quits working. Most people get a year. I'll take it! By that time other drugs could be out there that I can try. Right now MD Anderson is running a trial to see if patients who have been on one B-raf inhibitor can have success when placed on another. Obviously, I respond quite well to B-raf inhibitors so I am hopeful that they will have some success with that.
In order to get rid of my headache I decided to give a Neti Pot a try. It made a HUGE difference! My headache finally went away. Yay! This means that so far I have only had a few side effects! That's a welcome change!
The other night I had a rash on my chest. But, by the time I woke up it was gone. (could have been from the kiwi!)
And, don't laugh, but my hair hurts. Yes, my hair. It isn't an unfamiliar feeling. In fact, it felt like this all during biochemotherapy. However, during that I lost a lot of hair. So far, I haven't lost any hair. (knock on wood!) I just wish this odd feeling would go away! But, for the record, I'm not complaining. I am grateful I have hair and that I feel so good.
So, no complaints here. Life is good and I am grateful:)
Sjogren's and Bicycles
3 days ago