Today we met with my oncologist. He was shocked that the cancer was spreading. He agreed that the Interferon wasn't working and that we would have to try something else. The meds available through him were not really any meds that he would recommend. His recommendation was to get into MD Anderson in Houston, TX. They are the best of the best. They have lots of different meds there and if they can't help me they will send me to Bethasada, Maryland where they do a lot of studies for the National Institute of Health.
The Dr was very positive that MD Anderson would be able to help, but he was also realistic. What will probably happen now is that I will be on a maintenance drug for the rest of my life. I wasn't very excited about that. But, I will also do what ever I have to do to survive.
They ran another CT scan today from my head to my pelvis. I am also having another PET scan tomorrow (at 5:45 AM!!). I have been having headaches lately, which I am hoping is because of the crazy weather changes we've been having in KS. I have also been short of breath. Again, hoping it is more of an allergy/asthma thing. However, when you have cancer, EVERY LITTLE THING totally freaks you out. Please pray that the scans come out clean.
We leave on Sunday for my appt at MD Anderson. It will just be Cody and I. My parents are staying with the kids at our house. This has been a little hard on me. My babies are my strength. I want them near me at all times. But, this is how we have to do it. I'm not worried about them. That's not the issue. I just don't want to be away from them. I love them so, so much. But, in theory, I am doing this for them. I am doing it so that I am around for them. I know they will understand.
Sjogren's and Bicycles
4 days ago